Sunday, February 10, 2013

A Special Need

There are two sisters in our church at Lourdes and they both have cystic fibrosis.  Please read the story and commit to praying for them.  If you can help financially with the purchase of their medicine, contact me by email at:  parrisinelsalvador@gmail.com or go directly to the website: www.gofundme.com/maferandvaleriavizcarra to donate.




The tireless struggle Mafer 12 and Valeria 4, with cystic fibrosis.

The daily life in the Vizcarra family from El Salvador has not been easy. Mafer and Valeria's parents have had to join forces in order to prolong their lives. The girls have Cystic Fibrosis, a condition without cure that primarily affects the lungs and to a lesser extent the intestine, pancreas and liver.

On average, people who have cystic fibrosis live into their mid-to-late 30s in the US but in El Salvador those years are reduced more than a 50% due the lack of medication in the hospitals and the high cost of the medication.

Maria Fernanda (Mafer) loves to sing and wants to be an artist when she grows up.  Valeria loves to play and think about further study and learn more. The girls glances seem active and healthy, but since birth have not have a normal life.  They love going to school but their condition does not allow them to attend, as they miss too many days or weeks due their condition. Both sisters are finishing their education through "Homeschooling", a program that allows parents be the teachers of their children from their home.

They are unable to play like other kids due the poor condition of their lungs.  Their Mom had to quit her job to devote herself to her daughters. Dad is the only economic pillar of the family.

You won’t believe how expensive the medicine is. They need about $5000 per month to provide the medication for the 2 girls.  When they have money the hospitals run out of medication very often which does not help to maintain a continues treatment.   $5000!! Can you imagine that in a country where the minimal salary per month is $224.00. God has been faithful in providing through donation and people that get to know the girls and have compassion for them.

Valeria's conditions right now is not good at all she has an injury to the lungs which  progresses very fast.  The doctor told her mom that she may soon become dependent on oxygen.  They aren’t giving their parents much hope. Mafer is living with a bacteria called pseudomonas that can complicate her health.  Praise the Lord, so far, it has not done so.

Right now they need a drug called Pulmozyme.  The good news is that they have it in El Salvador; the bad news is that is very expensive for them. Would you help them? I am trying to raise $1000.00 for them. That will help them a lot, little by little.

PLEASE HELP MAFER AND VALERIA TO HAVE THE CHILDHOOD THEY DESERVE

Here is a web site you find more information about Cystic Fibrosis http://children.webmd.com/tc/cystic-fibrosis-topic-overview

Here is a link to an article in a Salvadorian newspaper about Valeria and Maria Fernanda (in Spanish)

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